That fighting spirit of Nitesh

We faced a heavy blow today. Nitesh's latest scans report says that the current treatment has stopped working. We have been advised to explore more clinical trials on an urgent basis.

The past two years have been an unending struggle for me and my love. Nitesh is my world and when my world shook up, all of you came to our rescue. Where we are now is because you supported and guided us. You prayed for us, focussed all your efforts in aligning situations, people and opportunities in our favor.
With your help, we did all we could to take on this ordeal. And it is through your support that WE WILL WIN.

Ode to our friend Tom Marsilje: A cancer fighter & cancer scientist

This is an Ode to our friend Tom Marsilje, who received his wings on Nov 14th.

A few months ago, we got to know of Tom Marsilje (Dr Thomas Marsilje) while searching for the right course of action for Nitesh. Tom, who was himself fighting Colorectal Cancer resolved to help humanity out by starting Late Stage MSS-CRC Trial Finder http://trialfinder.fightcrc.org/ to ensure that lack of timely information does not get in the way of Colorectal Cancer treatment. 

He himself was suffering from Stage 4 Colorectal Cancer and undergoing painful treatment. The level of maturity he has displayed is an example for all of us to carry throughout our lives.
It goes without saying that the first thing we wanted to do on landing in USA was to meet Tom. We got to spend a sunny afternoon with him in San Diego. For an unknown reason, we felt there was a higher power behind making it possible. He inspired us to fight and is our go-to person, was an ever guiding light.

Nitesh sharing his positive reports

Well, I have still got a lot of fight left in me! After reading the latest CT scan reports, it feels like music to my ears. 

- No new metastatic lesions.
- Reduction in size of few tumors.
- Most Critical and Life-Threatening tumors have reduced in size.

None of this would have been possible without you and for this, I owe you my life. You have been praying for me, helping Dimple and me out in ways that we could have never fathomed. My willpower shot up when I saw the number of people supporting me, actively taking time out to wish for my recovery. If my faith ever dwindled, you restored it.

Angels Walk In Our Lives

One year back, when we first landed in the US for my late husband Nitesh's cancer treatment, we felt like lost children, helpless and extremely incapable of making it out on our own. Nitesh's health was on a downward spiral and we had no clue as to how we would manage to live in this country with limited means and no support.
But then we got connected to the Karia family (Strangers for us at that time Poonam Karia, Parag Karia), who saved us. The past few months have been the most liberating ones, in our lives.

Nitesh was showered with abundant love and I was given immense amounts of support, dignity, and respect, things I felt were at times hard to come by back home. They took care of us, clothed and fed us, told us that we could defeat the disease and gave us immense satisfaction by supporting and understanding us, while many others were struggling to do so. 

In search of the miracle

This is a message to my well-wishers here. I have been feeling a heavy burden in my heart and thought it would be good to share it with my friends.

It's been one month that Nitesh and I flew to the USA for his treatment. Although we looked forward to the entire journey it was not easy, to say the least. Long hours of flying from one city to another, back and forth trip to the hospitals drained us. Nothing felt good. The toll of travel made him weaker to the extent that a few doctors refused to take his case. But he fought on and we consulted other hospitals and specialists who agreed to help us out. Our Alums and extended friend circle in the US made us feel at home and I couldn't be more thankful to them. 

But this is not a bed of roses. It never was supposed to be, and now it is getting tougher by the day. Nitesh feels a lot of pain despite medicines. His appetite is non-existent. There have been days when he goes to sleep on an empty stomach even though I prepared a meal for him.
At times, I wonder why we must go through this. We feel like two kids lost in this maze. Our friends in the USA have been witness to our struggles.